The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
- Title
- The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
- Author
- 김정아
- Keywords
- Amyotrophic lateral sclerosis; health services needs; needs assessment; psychometrics; questionnaires
- Issue Date
- 2018-12
- Publisher
- CAMBRIDGE UNIV PRESS
- Citation
- PALLIATIVE & SUPPORTIVE CARE, v. 16, no. 6, page. 692-697
- Abstract
- Objective. The aim of the study is to develop an amyotrophic lateral sclerosis supportive care needs (ALSSCN) instrument based on Fitch's Supportive Care Needs Framework and to test its psychometric properties.Method. This study consists of three parts: (1) item generation from the literature review and qualitative interview; (2) content validation; and (3) psychometric evaluation of the instrument. Participants who were diagnosed with ALS (n = 139) were recruited from two ALS clinics in Seoul, Korea, and Busan, Korea for the psychometric testing.Result. The ALSSCN consisted of 37 items with seven domains: physical, psychological, emotional, spiritual, social, informational, and practical needs. The Cronbach's alpha of each domain ranged from 0.61 (social needs) to 0.90 (emotional needs). The intra-class correlation coefficient for test-retest was 0.89, indicating good test-retest reliability. The overall ALSSCN was significantly negatively correlated with the quality of life, which supported convergent validity. Confirmatory factor analysis of the ALSSCN supported a seven-factor model.Significance of results. The ALSSCN has acceptable internal consistency, stability, and content and construct validity in a Korean ALS population. ALSSCN is a psychometrically sound measure and can be adopted by healthcare professionals, researchers, and administrators to comprehensively assess the perceived supportive care needs of patients with ALS.
- URI
- https://www.cambridge.org/core/journals/palliative-and-supportive-care/article/amyotrophic-lateral-sclerosis-supportive-care-needs-assessment-instrument-development-and-psychometric-evaluation/722FD987862E3CFFFF79D7B6B5DCED3Dhttps://repository.hanyang.ac.kr/handle/20.500.11754/120854
- ISSN
- 1478-9515; 1478-9523
- DOI
- 10.1017/S1478951517001250
- Appears in Collections:
- COLLEGE OF NURSING[S](간호학부) > NURSING(간호학부) > Articles
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