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dc.contributor.author김정아-
dc.date.accessioned2019-11-27T00:17:09Z-
dc.date.available2019-11-27T00:17:09Z-
dc.date.issued2017-07-
dc.identifier.citationJOURNAL OF CLINICAL NURSING, v. 26, no. 23-24, page. 4129-4152en_US
dc.identifier.issn0962-1067-
dc.identifier.issn1365-2702-
dc.identifier.urihttps://onlinelibrary.wiley.com/doi/abs/10.1111/jocn.13945-
dc.identifier.urihttps://repository.hanyang.ac.kr/handle/20.500.11754/114886-
dc.description.abstractAims and objectivesTo identify the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, categorise and summarise them into a Supportive Care Needs Framework and identify gaps in literature. BackgroundLittle is known about the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, and this subject has not previously been systemically reviewed. DesignScoping review. MethodsWe conducted a scoping review from the MEDLINE, EMBASE, CINAHL and Cochrane databases for the period January 2000-July 2016, using the following inclusion criteria: (i) written in English only, (ii) published in peer-reviewed journals, (iii) at least part of the research considered the supportive care needs perspective of amyotrophic lateral sclerosis/motor neuron disease patients or their caregivers and (iv) the population sample included patients of amyotrophic lateral sclerosis/motor neuron disease or their caregivers. ResultsThirty-seven articles were included. Our review shows that amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers' supportive care needs were mentioned across all seven domains of the Supportive Care Needs Framework. Most common were practical needs (n=24), followed by Informational needs (n=19), Social needs (n=18), Psychological needs (n=16), Physical needs (n=15), Emotional needs (n=13) and Spiritual needs (n=8). ConclusionFrom the perspectives of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, there is a significant need for more practical, social, informational, psychological, physical, emotional and spiritual support. Relevance to clinical practiceThe Supportive Care Needs Framework has potential utility in the development of patient-centred support services or healthcare policies and serves as an important base for further studies; especially, specific examples of each supportive care needs domain can guide in clinical settings when healthcare professionals provide multidisciplinary care to amyotrophic lateral sclerosis/motor neuron disease patients and individualised care.en_US
dc.description.sponsorshipThe study was supported by a grant from the Health Fellowship Foundation.en_US
dc.language.isoen_USen_US
dc.publisherWILEYen_US
dc.subjectamyotrophic lateral sclerosisen_US
dc.subjectcaregiveren_US
dc.subjecthealth service needsen_US
dc.subjectmotor neuron diseaseen_US
dc.subjectreviewen_US
dc.subjectscoping reviewen_US
dc.subjectsupportive careen_US
dc.titleSupportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: Ascoping reviewen_US
dc.typeArticleen_US
dc.relation.no23-24-
dc.relation.volume26-
dc.identifier.doi10.1111/jocn.13945-
dc.relation.page4129-4152-
dc.relation.journalJOURNAL OF CLINICAL NURSING-
dc.contributor.googleauthorOh, Juyeon-
dc.contributor.googleauthorKim, Jung A.-
dc.relation.code2017016787-
dc.sector.campusS-
dc.sector.daehakSCHOOL OF NURSING[S]-
dc.sector.departmentSCHOOL OF NURSING-
dc.identifier.pidjoyhippo-
dc.identifier.orcidhttp://orcid.org/0000-0002-6575-452X-
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COLLEGE OF NURSING[S](간호학부) > NURSING(간호학부) > Articles
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