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The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation

Title
The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
Author
김정아
Keywords
Amyotrophic lateral sclerosis; health services needs; needs assessment; psychometrics; questionnaires
Issue Date
2018-12
Publisher
CAMBRIDGE UNIV PRESS
Citation
PALLIATIVE & SUPPORTIVE CARE, v. 16, no. 6, page. 692-697
Abstract
Objective. The aim of the study is to develop an amyotrophic lateral sclerosis supportive care needs (ALSSCN) instrument based on Fitch's Supportive Care Needs Framework and to test its psychometric properties.Method. This study consists of three parts: (1) item generation from the literature review and qualitative interview; (2) content validation; and (3) psychometric evaluation of the instrument. Participants who were diagnosed with ALS (n = 139) were recruited from two ALS clinics in Seoul, Korea, and Busan, Korea for the psychometric testing.Result. The ALSSCN consisted of 37 items with seven domains: physical, psychological, emotional, spiritual, social, informational, and practical needs. The Cronbach's alpha of each domain ranged from 0.61 (social needs) to 0.90 (emotional needs). The intra-class correlation coefficient for test-retest was 0.89, indicating good test-retest reliability. The overall ALSSCN was significantly negatively correlated with the quality of life, which supported convergent validity. Confirmatory factor analysis of the ALSSCN supported a seven-factor model.Significance of results. The ALSSCN has acceptable internal consistency, stability, and content and construct validity in a Korean ALS population. ALSSCN is a psychometrically sound measure and can be adopted by healthcare professionals, researchers, and administrators to comprehensively assess the perceived supportive care needs of patients with ALS.
URI
https://www.cambridge.org/core/journals/palliative-and-supportive-care/article/amyotrophic-lateral-sclerosis-supportive-care-needs-assessment-instrument-development-and-psychometric-evaluation/722FD987862E3CFFFF79D7B6B5DCED3Dhttp://repository.hanyang.ac.kr/handle/20.500.11754/120854
ISSN
1478-9515; 1478-9523
DOI
10.1017/S1478951517001250
Appears in Collections:
COLLEGE OF NURSING[S](간호학부) > NURSING(간호학부) > Articles
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