Full metadata record
DC Field | Value | Language |
---|---|---|
dc.contributor.author | 김정아 | - |
dc.date.accessioned | 2019-11-27T00:17:09Z | - |
dc.date.available | 2019-11-27T00:17:09Z | - |
dc.date.issued | 2017-07 | - |
dc.identifier.citation | JOURNAL OF CLINICAL NURSING, v. 26, no. 23-24, page. 4129-4152 | en_US |
dc.identifier.issn | 0962-1067 | - |
dc.identifier.issn | 1365-2702 | - |
dc.identifier.uri | https://onlinelibrary.wiley.com/doi/abs/10.1111/jocn.13945 | - |
dc.identifier.uri | https://repository.hanyang.ac.kr/handle/20.500.11754/114886 | - |
dc.description.abstract | Aims and objectivesTo identify the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, categorise and summarise them into a Supportive Care Needs Framework and identify gaps in literature. BackgroundLittle is known about the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, and this subject has not previously been systemically reviewed. DesignScoping review. MethodsWe conducted a scoping review from the MEDLINE, EMBASE, CINAHL and Cochrane databases for the period January 2000-July 2016, using the following inclusion criteria: (i) written in English only, (ii) published in peer-reviewed journals, (iii) at least part of the research considered the supportive care needs perspective of amyotrophic lateral sclerosis/motor neuron disease patients or their caregivers and (iv) the population sample included patients of amyotrophic lateral sclerosis/motor neuron disease or their caregivers. ResultsThirty-seven articles were included. Our review shows that amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers' supportive care needs were mentioned across all seven domains of the Supportive Care Needs Framework. Most common were practical needs (n=24), followed by Informational needs (n=19), Social needs (n=18), Psychological needs (n=16), Physical needs (n=15), Emotional needs (n=13) and Spiritual needs (n=8). ConclusionFrom the perspectives of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, there is a significant need for more practical, social, informational, psychological, physical, emotional and spiritual support. Relevance to clinical practiceThe Supportive Care Needs Framework has potential utility in the development of patient-centred support services or healthcare policies and serves as an important base for further studies; especially, specific examples of each supportive care needs domain can guide in clinical settings when healthcare professionals provide multidisciplinary care to amyotrophic lateral sclerosis/motor neuron disease patients and individualised care. | en_US |
dc.description.sponsorship | The study was supported by a grant from the Health Fellowship Foundation. | en_US |
dc.language.iso | en_US | en_US |
dc.publisher | WILEY | en_US |
dc.subject | amyotrophic lateral sclerosis | en_US |
dc.subject | caregiver | en_US |
dc.subject | health service needs | en_US |
dc.subject | motor neuron disease | en_US |
dc.subject | review | en_US |
dc.subject | scoping review | en_US |
dc.subject | supportive care | en_US |
dc.title | Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: Ascoping review | en_US |
dc.type | Article | en_US |
dc.relation.no | 23-24 | - |
dc.relation.volume | 26 | - |
dc.identifier.doi | 10.1111/jocn.13945 | - |
dc.relation.page | 4129-4152 | - |
dc.relation.journal | JOURNAL OF CLINICAL NURSING | - |
dc.contributor.googleauthor | Oh, Juyeon | - |
dc.contributor.googleauthor | Kim, Jung A. | - |
dc.relation.code | 2017016787 | - |
dc.sector.campus | S | - |
dc.sector.daehak | SCHOOL OF NURSING[S] | - |
dc.sector.department | SCHOOL OF NURSING | - |
dc.identifier.pid | joyhippo | - |
dc.identifier.orcid | http://orcid.org/0000-0002-6575-452X | - |
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